Watching warm summer days pass by from the confines of his room is no fun for Fabian. It’s tough to seem to see him on my visits feeling down and not being able to fix that – my attempts at humour are not even funny. He is the bravest boy to endure this but the continuing hospitalisation inevitably takes its toll on his wellbeing. We did enjoy watching the Wimbledon final together, good object lesson in winning against adversity.
With each passing day we await signs of engraftment, which at D+14 could be imminent. Thankfully, he has stayed infection free with the occasional temperature spikes that are immediately dampened with a barrage of antibiotics. Eating and drinking is still something to hope for so all his nutrition and fluids needs continue to be given intravenously. Last weekend we had the use of one of the hospital’s flats so managed some family time together in the heart of WC1 – one of the perks of having a long-term in patient! We also heard the sad news that a contemporary of Fabian’s at the Marsden, and someone who met the Royals with him in 2011, lost his long battle with acute myeloid leukaemia. He is, for sure, in a better pain-free place, but a tragic loss nonetheless.
If anyone has time to drop a line, I know Lydia and Fabian would love to receive any letters of encouragement by post. Just address to them: c/o Fox Ward, Great Ormond Street Hospital, London WC1N 1LE