Category Archives: Uncategorized

Well we are the right side of transplant, no longer ‘pre’ but ‘post’.   However, what ought to have been a straightforward harvesting procedure for Cassia turned into something far more protracted as surgeons were unable to collect the required WB … Continue reading →

I’m here with Fabian on the eve of T-day, his transplant. It’s been a week since his admission and the unwelcome side effect of the pre-conditioning chemo has been to cause him the usual loss of appetite coupled with frequent … Continue reading →

Ok, so no news is good news, right? Indeed, no major developments to report as we count down the days to admission. Fabian assiduously marks his calendar each day as that time approaches but it is hardly what any 11 … Continue reading →

Staying in remission is a full time job.  And a very important one.  As the days countdown to T-Day we know this aggressive disease could return at any time and jeopardise the outcome of Fabian’s planned transplant.  Since achieving remission … Continue reading →

I’ve titled this entry after the name of  this moving video  which charts the story of a little girl in the States who underwent similar gene therapy to that which Fabian will receive and had an amazing outcome.  It may … Continue reading →

To those of who that pray for Fabian – and I know many do – I want to encourage you that your prayers offered in faith most certainly make a difference.  Seeing him now, in remission and in such good … Continue reading →

Much to report since last.  Fabian’s improving blood count following chemo resulted in him being allowed home late last Friday.  Seven weeks hospital stay had certainly fuelled his eagerness to be back in his own room and thankfully, he approved … Continue reading →

Well we are now into Day  44 of this incarceration, though I myself am not incarcerated – just in-car-se-ated since my weekly mileage has multiplied.  Our wonderful Fabian is finally recovering his blood count (WBC 1.1) and up and about … Continue reading →

We’ve now settled into the familiar routine post chemo of daily temperature spikes, antibiotics and waiting for count recovery.  It is a war of attrition.  The lagged effect of the intensity of this block hit Fabian about 6 days after … Continue reading →

Sitting in the Marsden next to Fabian whilst he sleeps soundly, a beneficial side effect of the intense chemo block he has just finished. Unfortunately, there are other less pleasant ones such as diarrhoea, sore eyes and loss of appetite … Continue reading →