Hospital and drugs

Wednesday, October 26, 2011 4:43 PM, BST
I’m here at Kingston Hospital where Fabian is having his regular ambisone infusion. Being treated like a royal by the nurses is going down well with him; food, drink, DVDs – all are provided at his request! We were surprised by his unexpected discharge from the Marsden on Monday night. He’d remained so well throughout the first course of cytarabine he’s been allowed home in between blocks, the next one beginning tomorrow. He’s back on the ward now, rather than in isolation and I’d forgotten how disruptive that can be to a nights sleep when I stayed last weekend. Intermittent beeping from intravenous pumps, crying babies, lights on and off are just some examples. The new £18 million Children’s unit is now fully operational and we could not be in a more state of the art centre. We heard today the provisional date for Fabian’s transplant – 8th December – T Day. His latest marrow results are still incomplete and depending on the morphology test, he may be required to have an additional intensive chemo block that would push that date back by a month. I’m guessing though, that Christmas will be spent in isolation. I only hope Santa scrubs up before permeating the lead-lined walls of the radiation suite.
Lyd’s own op takes place in the morning so it goes without saying she would value your thoughts and prayers. A steady stream of prepared meals given by friends means we have a well stocked freezer to see us through a week without Mum’s cooking. To those of you enjoying a half term break, tell me what it feels like!
Adieu et mon droit.

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