One Direction – no turning back

Do bloggers ever get writers block? It’s cold and dark outside and I’m struggling to find an inspired start to this entry.  Maybe that was it?  So to tell you what’s been happening; we are already well into the conditioning treatment which is medically speaking ‘going well’ but emotionally tough on us.  Our wonderful Fabian is being so brave and compliant with this.  Yesterday I took him into one of the irradiation sessions where he dutifully laid out on the highly uncomfortable positioning bed in the so-called mould room.  The radiation beam gun, technically called a Linear Accelerator, would not look out of place in a Star Wars movie – and it’s huge. Think dentist’s X-ray gun times 20.  Once the beam’s cross hairs are aligned, we all leave decant to the NASA-style control room where we can monitor him via CCTV. This is one TV set I would rather not see him on.  And he has to remain perfectly still for half an hour or so which he has done so well.  Afterwards, the nurse awards him with stickers and he gets some ‘courage beads’ that glow in the dark (as indeed he probably will!).  There have been some early side effects including headaches, nausea and vomiting but Fabian has kept in high spirits.  We’ve been given a spacious and comfortable room which is home for the next few weeks and already resembles a lego building site now that he’s settled in.  Cassia will join him and Lydia later in the week.  Now that treatment to destroy Fabian’s immunity has begun, there is no turning back and she is, quite simply, his lifeline so one is understandably nervous about her doing anything that might be remotely hazardous!  That said, she had the shock treat of her life at the weekend when she was invited to join a select few children to meet the boy band ‘One Direction’.  I had approached the band’s management a while back asking for this favour but had heard nothing until a couple of days ago when I was called by the charity Rays of Sunshine who had been passed our details by them.  By amazing coincidence, the boys were performing at Hammersmith that weekend so were able to schedule in this meet and greet with perfect timing.  Now if you’re not 12 and female you may not understand what the fuss is all about, but believe me it was on a par with meeting William and Kate for her!  I only hope the adrenalin rush to her blood has calmed down in time for the transplant.  Check out the pics in the gallery. So I close this, reminded of our abundant God who produces water from rock and makes a desert place fertile.  Thank you for  what we know has been a surge in prayers and petitions for Fabian this week.

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2 Responses to One Direction – no turning back

  1. Lesley Benge

    Cool photos! How exciting for Cassia! You’re doing really well Fabian, keep up the good work (keeping still when you have to etc, and making lots of Lego models!). Give our love to Cassia: you make a great team. Lesley & Steve xx

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