Whose perspective?

D+12: No flicker of movement on the blood countometer.  In fact Fabian’s platelets fell to single figures requiring a further transfusion.  The mucositis has well and truly taken hold and necessitated intravenous morphine for pain relief which Fabian controls with a pulse button. He only needs this intermittently but perversely, morphine can exacerbate the side effects itself.  His thickening hair is in fact falling out again (ho hum) and is now a rather monk-like style.  Eating continues to be negligible therefore the nasogastric tube remains in regular use, so with all the various fluid connections, Fabian is limited to a six foot radius of movement.  He has been continuing his learning with the teaching staff and is very proud of his work.  We’ve tried skyping his class during lessons but this proved more of a welcome distraction to the other pupils!  He enjoys visits from his brother and sisters, even if this is limited to gesturing through the glass.  Despite his obvious medical condition, the doctors seem very pleased with his progress so I guess it’s a question of perspective – and they have seen far worse cases than him at this stage.  So we do believe the prayer surrounding Fabian is sustaining and protecting him from more acute reactions.  A date for your diary – March 2nd will be his 10th birthday and it would be truly wonderful to have everyone home for that occasion.  Let’s believe for it!