Category Archives: Uncategorized

D+ 22:  I’ve always tried to write this blog through a ‘half full’ perspective; no-one wants to read a ‘woe is me’ diarist.  But there are times when feeling ‘half empty’ would be telling it as it is and this … Continue reading →

D+16: When Elijah saw a cloud the size of a man’s fist in the distance, it was the first sign of the downpour to come. So it is for Fabian, as a flicker in his counts yesterday indicated the presence … Continue reading →

D+12: No flicker of movement on the blood countometer.  In fact Fabian’s platelets fell to single figures requiring a further transfusion.  The mucositis has well and truly taken hold and necessitated intravenous morphine for pain relief which Fabian controls with … Continue reading →

D+7: one week today since transplant. Not much of interest to report whilst we await engraftment; rather like watching paint dry.  The first tell-tale signs of GvHD have appeared; mucositis, diarrhoea and skin rash. This is exactly as predicted and … Continue reading →

So transplant day arrived!  Somewhat of an anti-climax given that the procedure is in effect merely a mega blood transfusion.  I still wonder how they can squeeze an additional pint of blood into a  child’s body, albeit Fabian looked very … Continue reading →

We’re now well past the halfway mark for transplant conditioning.  Six down, two TBI sessions to go.  There was a brief hiatus at this afternoon’s session when the accelerator broke down and Fabian was left in limbo whilst they hastily … Continue reading →

Ask Fabian whether he still needs a bone marrow transplant and he’ll point to the fact that his hair is growing back so he must be better.  And he has been extremely well of late, great appetite, loads of energy … Continue reading →