Category Archives: Uncategorized

Check this out – our consultant has told us an awesome statistic; he said one modified T-Cell could destroy a thousand leukaemic cells!  This immediately reminded me of that old testament scripture ‘one of you shall rout a thousand, because … Continue reading →

It’s official.  Fabian is now the recipient of genetically-modified T cells (lymphocytes) in this cutting-edge clinical trial that we believe will cure him of leukaemia.  But what an anti-climax!  On T Day itself he first underwent a standard bone marrow … Continue reading →

So I’m writing this entry from an all too familiar setting; Fox ward at Great Ormond Street. Yes, we’re back here for the final treatment phase, somewhat overdue but timely nonetheless. Fabian’s most recent bone marrow aspirate indicated a very … Continue reading →

Yes, it’s been a while.  But be assured if there were developments to report – both good and bad – faith4fabian readers would be the first to hear.  So there haven’t been.  And that of course is a good development … Continue reading →

I cant’t believe I’ve waited nearly a week to report that Fabian was actually discharged! Perhaps it was because I half expected him to be re-admitted within a day or so, but nevertheless he and Lydia are back after 81 … Continue reading →

Days become weeks and weeks become months.. Here we still are, another week on with no firm discharge date in place.  In fact, following his spiked temperature last Sunday,  Fabian took a turn for the worse as our old friend … Continue reading →

It’s been a frustrating couple of weeks since I last wrote.  The end has been in sight for days now but doctors have been reluctant to give the green light for Fabian’s discharge, so we remain on amber.  He has stayed … Continue reading →

In most of life’s situations, a negative result is generally bad.  Not so for an MRD test.  We’ve had Fabian’s result back and he is MRD negative which confirms there is now no detectable trace of leukaemia in his marrow … Continue reading →

Five weeks post transplant and I guess many of you are wondering about engraftment.  Well so am I, hence the silence hitherto.  I can, though, now report that Fabian’s blood count hit the all-important 2.0 WBC level but promptly dropped … Continue reading →

Watching warm summer days pass by from the confines of his room is no fun for Fabian.  It’s tough to seem to see him on my visits feeling down and not being able to fix that – my attempts at … Continue reading →